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Alpha 1 Association - Home...
Our mission is to identify those affected by alpha-1-antitrypsin deficiency and to improve the quality of their lives through support, education, advocacy and research. Alpha-1 is a genetic, inherit...
http://www.alpha1.org

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Alpha One Foundation...
The Alpha One Foundation is a not-for-profit Florida corporation founded in early 1995 to advance the means to control and cure A1AD and to improve the quality of life for those with the disorder....
http://www.alphaone.org

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Birth Defects Research for Children...
The Association of Birth Defect Children (ABDC) is a non-profit organization that provides information and support for all kinds of birth defects....
http://www.birthdefects.org

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Communicating Partners Center: James MacDonald's Web Page on Autism andLanu...
[ Home ] [ Goals ] [ What's New ] [ About Us ] [ Contact Us ] [ Clinical Services ] [ Community Education ] [ Questions & Answers ] [ Autism ] [ Down Syndrome ] [ Training Materials ] [ Ordering Info...
http://www.jamesdmacdonald.com

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Congenital Heart Disease Information and Resources...
Interactive forums, resources, and internet links for families, adults with CHD, nurses, and other health care professionals with an interest in pediatric cardiology....
http://www.tchin.org

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Down Syndrome: Health Issues - Medical Essays and Information...
Medical essays and information about Down Syndrome for parents and professionals, by Len Leshin, M.D....
http://www.ds-health.com

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Eleanor Roosevelt Institute: Home Page...
Our mission is to conduct basic biomedical research that may lead to therapies for Down syndrome, ALS, cancer, and Rec8 Syndrome. ERI is a nonprofit organization....
http://eri.uchsc.edu

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ENTIS (European Network of Teratology Information Services)...
ENTIS (European Network of Teratology Information Services) was founded in Milan in May 1990. ...
http://www.entisorg.com

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GeneClinics: Clinical Genetic Information Resource - Home Page...
Your browser does not support HTML frames but you may view the home page without the navigation bar. Please follow this link to do so. ...
http://www.geneclinics.org

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Genetic Science Learning Center...
An educational resource that explains how genetics relates to our lives and society. Online activities, labs, experiments, and workshops for students, teachers, families, and all others curious about ...
http://gslc.genetics.utah.edu

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Genetics Birth Defects Center...
Genetics Birth Defects Center: Birth Defects Prevention, chromosome, syndrome, and trisomy related issues are a few of the items addressed. Serving the Gulf Coast Region....
http://www.birthdefects.net

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Hydrocephalus Association -- Support, Education, Advocacy...
Hydrocephalus Association 870 Market Street, Suite 705 San Francisco, CA 94102 Phone: (415) 732-7040 • Fax: (415) 732-7044 Email:hydroassoc@aol.com Who are we? How can you reach us? What services do ...
http://www.hydroassoc.org

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International Birth Defects Information Systems...
International Birth Defects Information Systems; Syndromes, Disorders, and related information for the Health Care provider, Family and Patients. Many links to local and international sites....
http://www.ibis-birthdefects.org

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International Clearinghouse for Birth Defects Monitoring Systems (ICBDMS)...
The International Clearinghouse for Birth Defects Monitoring Systems (ICBDMS) is a non-governmental organization in official relations with the World Health Organization representing more than 30 malf...
http://www.icbd.org

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March of Dimes...
Four major problems threaten the health of America's babies: birth defects, infant mortality, low birthweight, and lack of prenatal care. The March of Dimes has adopted goals for the year 2000 to brin...
http://www.modimes.org

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myGeneticMD - Integrating Genetics into Healthy Living...
A genetic consultation is an essential service designed to bring understanding of genetic knowledge to the public. It involves the collection of information from the patient, the assessment of a...
http://www.dnamd.com

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National Birth Defects Prevention Network...
A group of individuals involved in birth defects surveillance, research, and prevention....
http://www.NBDPN.org

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National Society of Genetic Counselors, Inc. NSGC...
A new and important member of the genetics team was introduced in 1971 when the first class of master's degree genetic counselors graduated from Sarah Lawrence College in Bronxville, NY. With this pr...
http://www.nsgc.org

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New Zealand Down Syndrome Association...
Mission Statement To promote the inclusion of people with Down syndrome into the community  The New Zealand Down Syndrome Association (NZDSA Inc) is run by family and Whanau of people with Down S...
http://nzdsa.org.nz

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NICHD - The National Institute of Child Health and Human Development Offici...
The National Institute of Child Health and Human Development (NICHD) seeks to assure that every individual is born healthy, is born wanted, and has the opportunity to fulfill his or her potential for ...
http://www.nichd.nih.gov

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Spina Bifida and Hydrocephalus Association of Canada...
Spina Bifida and Hydrocephalus Association of Canada L'Association de spina-bifida et d'hydrocéphalie du Canada ...
http://www.sbhac.ca

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Spina Bifida and Hydrocephalus Association of SA - What is spina bifida...
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http://www.spinabifida.asn.au

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Spina Bifida Association of America - Welcome...
This is the home page of the Spina Bifida Association of America...
http://www.sbaa.org

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Spina Bifida Association of Victoria...
Welcome to the Spina Bifida Association of Victoria, Australia. We are a self help group comprising people born with spina bifida, parents, friends and interested professionals. Through these pages, ...
http://www.sbav.org.au

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Teratology Society Home Page...
Teratology Society Birth Defects Research | Education | Prevention The Teratology Society is a multidisciplinary scientific society founded in 1960, the members of which study the causes and biologic...
http://www.teratology.org

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Thalidomide Victims Association of Canada...
The Thalidomide Victims Association of Canada (TVAC) is an organization of approximately 125 Canadian victims of the drug thalidomide. It provides non-monetary programs, services, and advocacy for...
http://www.thalidomide.ca

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The Arizona Spina Bifida Association...
ASBA provides online information and services to its members,and the general public, regarding spina bifida and associated secondary conditions. Arizona constituency of SBAA....
http://www.arizonasba.org

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Welcome to the Down's Syndrome Association UK Online Home Page!...
The Down's Syndrome Association is the largest support group in the UK for people with Down's syndrome and their carers. We're here to help people with Down's syndrome....
http://www.dsa-uk.com

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Welcome to the Spina Bifida Genetic Research Project!...
Spina bifida genetic research project, Northwestern University and Children's Memorial in Chicago...
http://www.spinabifida.northwestern.edu

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This page was created on Monday, May 14, 2001

Last updated by Andrew Lopez, RN on March 13, 2023


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