Nursing & Healthcare Directories on: The Nursefriendly
Respiratory Diseases, Pulmonary Conditions,
Chronic Obstructive Pulmonary Disease (COPD)

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Around the Clock with COPD (Chronic Obstructive Pulmonary Disease), American Lung Association:"The following nonmedical hints and suggestions are intended to ease living with Chronic Obstructive Pulmonary Disease (COPD). They have been assembled from actual daily practice by members of the Respiratory Club, a support group for Pulmonary patients and their families, jointly sponsored by the American Lung Association of Connecticut and Gaylord Hospital in Willingford, Connecticut. We, the club members, offer you ideas we have had to learn, in large part, by ourselves. We hope these suggestions may help speed your adjustment to a more secure, leisurely and pleasant way of life."
American Lung Association
61 Broadway, 6th Floor NY, NY 10006 212-315-8700
http://www.lungusa.org/diseases/copd_clock.html

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Chronic Lung Disease Resource, Cheshire Medical Center and Dartmouth-Hitchcock Keene:"Chronic Lung Disease Resource highlights the best information on Chronic Lung Disease using both original and off site links. Our resource is oriented toward the interest and technical sophistication of the general public. We would greatly appreciate your recommendations for additions to our list!"
Cheshire Medical Center and Dartmouth-Hitchcock Keene
580-590 Court Street Keene, New Hampshire 03431
(603) 354-5400
http://www.cheshire-med.com/programs/pulrehab/rehinfo.html

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Living With COPD: Your Nutritional Status, Clinical Nutritional Services The Cheshire Medical Center:"COPD, or chronic obstructive pulmonary disease, affects 10%- 20% of adults and is the second leading cause of disability among Americans. COPD includes chronic bronchitis and emphysema. Nutrition and COPD impact one another greatly. A person's nutritional status can influence the degree of severity of COPD, and COPD can create circumstances that make consuming an adequate diet difficult."
Cheshire Medical Center and Dartmouth-Hitchcock Keene
580-590 Court Street Keene, New Hampshire 03431
(603) 354-5400
http://www.cheshire-med.com/services/dietary/nutrinew/copdnut.html

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COPD-ALERT:"COPD-ALERT is a nonprofit, INTERNET-based SUPPORT and ADVOCACY group for COPD patients, caregivers, medical professionals, and all those who care. Our membership extends to nearly all states and to several foreign countries. Although many of our members are senior citizens, we experience an increased influx of baby boomers. COPD-ALERT actively solicits medical information and pro bono professional advice from medical organizations, licensed respiratory specialists, and pharmacologists. We have been working with the National Heart, Lung, and Blood Institute, American Thoracic Society, US COPD Coalition, among others, to provide COPD patients with information about clinical trials, specialized clinics, available medications, new therapies, and disease management via the Internet."
vlady@medscape.com
http://www.geocities.com/wrozenba/COPD.html

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COPD-International.com:"COPD (Chronic Obstructive Pulmonary Disease) is an umbrella term used to describe lung disease associated with airflow obstruction. Most generally, emphysema, chronic bronchitis and chronic asthma either alone or in combinations fall into this category. There is continuing debate as to whether this term also includes Asthma (non chronic), however as a general rule, it is not included as, even though it does have obstructive components to it, it is in part reversible, and is more generally considered a restrictive lung disease."
webmaster@COPD-International.com
http://www.COPD-International.com

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Emphysema Foundation For Our Right To Survive (EFFORTS):"If you are looking for more information or support about Emphysema or other Chronic Obstructive Pulmonary Disease (COPD), you have found the most energetic and comprehensive organization on the web. Be an informed patient. Learn that living with COPD, while a change in lifestyle, is not a death sentence. As well as providing a very vital support, through a joint email discussion list and educational resource for its members, we are also working to educate and inform patients and care providers as well as promote deeper research for more effective treatment and hopefully a cure for Emphysema and other Chronic Obstructive Pulmonary Disease. Be an activist in managing your own disease and join our EFFORTS to help promote vital medical research and education. If we don't do this, who will?" Claycomo Plaza * 411 NE US HWY 69 * Claycomo, Mo. 64119 * FAX 816-413-0176, EFFORTS-request@HOME.EASE.LSOFT.COM
http://www.emphysema.net/

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Global Initiative for Chronic Obstructive Lung Disease:"Recommend effective COPD management and prevention strategies for use in all countries Increase awareness of the medical community, public health officials and the general public that COPD is a public health problem."
shurd@prodigy.net
http://www.goldcopd.com/

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Emphysema and Chronic Obstructive Pulmonary Disease, Symptoms, Life Extension Foundation:"One tragedy of emphysema is that most patients lose 50-70% of their functional lung tissue before they become aware of the symptoms of the disease. Breathlessness--a feeling of being out of breath during routine physical activity--is usually the first symptom people notice. If walking up a flight of stairs takes your breath away, that could mean you have emphysema (but it is also a symptom of heart disease and some types of cancer). Other common symptoms of emphysema are unexplained weight loss; increased chest size (barrel chest); wheezing or labored breathing (or reduced breath sounds); a productive cough yielding large amounts of dark, thick phlegm or mucus; and a lingering cough, often dismissed as "smoker's cough." Other symptoms may be skipped breaths, insomnia or frequent nocturnal waking, memory loss, morning headaches, impotence, nasal flaring, blurred vision, increased breathing difficulty while lying down, chronic fatigue, impaired concentration, atypical irritability or loss of temper, excessive daytime sleepiness, and swelling of feet, ankles, or legs. If any of these symptoms persist, consult a doctor."
Life Extension Foundation
P.O. Box 229120 Hollywood, FL 33022, USA
Toll Free Phone (Advisors) - 800-226-2370
Toll Free Phone (Customer Service) - 800-678-8989, Direct Phone - 954-766-8433
Fax - 954-761-9199
generalquestions@lifeextension.com
http://www.lef.org/protocols/prtcl-046.shtml

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COPD (Chronic Obstructive Pulmonary Disease), Medline Plus:"News, General/Overviews, Anatomy/Physiology, Clinical Trials, Coping, Diagnosis/Symptoms, Disease Management, Nutrition, Pictures/Diagrams, Rehabilitation, Research, Specific Conditions/Aspects, Treatment."
National Library of Medicine
8600 Rockville Pike Bethesda, Maryland 20894
Phone: (301) 496-6308 Fax: (301) 496-4450 email: publicinfo@nlm.nih.gov
http://www.nlm.nih.gov/medlineplus/copdchronicobstructivepulmonarydisease.html

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Chronic Obstructive Pulmonary Disease, National Heart, Lung, and Blood Institute:"Human Respiratory System (Illustration) What Is Chronic Obstructive Pulmonary Disease? What Are Chronic Bronchitis and Emphysema? What Goes Wrong With the Lungs and Other Organs in Chronic Obstructive Pulmonary Disease? What Is the Course of Chronic Obstructive Pulmonary Disease? How Is Chronic Obstructive Pulmonary Disease Detected? How Is Chronic Obstructive Pulmonary Disease Treated? How Can Patients With Chronic Obstructive Pulmonary Disease Cope Best With Their Illness? What Types of Research on Chronic Obstructive Pulmonary Disease Is the National Heart, Lung, and Blood Institute Supporting? For More Information, Glossary."
NHLBI Health Information Center
P.O. Box 30105 Bethesda, MD 20824-0105
Phone: 301 592 8573 TTY: 240 629 3255 Fax: 301 592 8563
nhlbiinfo@rover.nhlbi.nih.gov
http://www.nhlbi.nih.gov/health/public/lung/other/copd/copd_toc.htm

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Recognizing Changes In Signs And Symptoms Of Chronic Obstructive Pulmonary Disease (COPD), National Jewish Medical and Research Center:"Recognizing changes in signs and symptoms of Chronic Obstructive Pulmonary Disease (COPD) is an important part of managing your illness. Knowing when symptoms are changing is helpful so that treatment and other interventions can begin promptly. Early treatment is most effective. If severe symptoms are present, it is vital to begin the appropriate treatment immediately. Accurate and timely assessment of your symptoms can help you and your health care provider decide if treatment should begin in the home, at your health care provider's office or in the emergency room. Early symptoms or warning signs are unique to each person. These warning signs may be the same, similar or entirely different with each episode. Usually you will be the best person to know if you are having difficulty breathing. However, some changes are more likely to be noticed by other persons, so it is important to share this information sheet with your family and those close to you."
National Jewish Medical and Research Center
1400 Jackson Street Denver, CO 80206
Telephone: 1-800-222-LUNG (5864). or (outside the United States) 303-388-4461 (7700)
http://www.nationaljewish.org/medfacts/recognizing_copd.html

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Pulmonary Hypertension Association (PHA):"The mission of the Pulmonary Hypertension Association (PHA) is to seek a cure, and to provide hope, support and education, and to promote awareness and to advocate for the pulmonary hypertension community. The vision of PHA is to improve the lives of those affected by pulmonary hypertension."
Pulmonary Hypertension Association
850 Sligo Ave Suite #800 Silver Spring, MD 20910
web@phassociation.org
http://www.phassociation.org/

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Last updated by Andrew Lopez, RN on December 1, 2017


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